Myeloma Resources

Funding Myeloma
Click here to view PDF
Co-Leader Lisah Maupin put together a very concise and professional presentation for our group after a meeting that was focused on patient financial assistance and fund raising for MM.

International Myeloma Foundation (IMF)
www.myeloma.org
A non- profit organization dedicated to the education, research, and treatment of myeloma         

IMF Infoline  800-452-2873  Toll free providing immediate support and information.

IMF Patient and Family Seminar These meetings enable patients and their families to learn about the latest developments in myeloma from a panel of world-renowned myeloma experts.  Usually the third week of February in Boca Raton, Florida.

The Myeloma Beacon
www.myelomabeacon.com
Independent, up-to-date news and information for the myeloma community. 

Myeloma Crowd
www.myelomacrowd.org
A site created for patients by patients.  Their goal is to simplify complex information and arm patients with important and current information.

Lab Tests On Line
www.labtestsonline.org/understanding/
A go-to reference for your questions ranging from why a lab test was ordered to what the results might mean.  Designed for the patient to better understand clinical laboratory tests.

Bone Marrow Transplant Information Network (BMT Infonet)
www.bmtinfonet.org/
An organization dedicated to providing easy-to-understand information about bone marrow transplants and the decision making process.

NCCN
www.nccn.org/patients/guidlines/myeloma/index.html#12
This 86 page on line booklet  is probably the best comprehensive resource on  multiple myeloma.  It is in depth, concise, and understandable.  A great resource for both new and veteran patients.

Multiple Myeloma Research Foundation
www.themmrf.org
A non-profit organization dedicated to funding research and helping patients understand their disease.  A great source for finding clinical trials.

American Society of Hematology (ASH)
www.hematology.org/patients/
Their mission is to further the understanding , diagnosis, treatment, and prevention of disorders of the blood by promoting research, clinical care, education, training and advocacy in hematology.

Multiple Myeloma Diagnosis and Treatment
www.mayoclinicproceedings.org/article/S0025-6196(15)00895-2/pdf
A bit technical so you will need your white coat to read it as it is written for a physician audience.  Probably the best single piece of work to give you the big picture (with supporting data) on current approaches to diagnosis and treatment of multiple myeloma.  A Mayo Clinic publication.