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Co-Leader Lisah Maupin put together a very concise and professional presentation for our group after a meeting that was focused on patient financial assistance and fund raising for MM.
International Myeloma Foundation (IMF)
A non- profit organization dedicated to the education, research, and treatment of myeloma
IMF Infoline 800-452-2873 Toll free providing immediate support and information.
IMF Patient and Family Seminar These meetings enable patients and their families to learn about the latest developments in myeloma from a panel of world-renowned myeloma experts. Usually the third week of February in Boca Raton, Florida.
The Myeloma Beacon
Independent, up-to-date news and information for the myeloma community.
A site created for patients by patients. Their goal is to simplify complex information and arm patients with important and current information.
Lab Tests On Line
A go-to reference for your questions ranging from why a lab test was ordered to what the results might mean. Designed for the patient to better understand clinical laboratory tests.
Bone Marrow Transplant Information Network (BMT Infonet)
An organization dedicated to providing easy-to-understand information about bone marrow transplants and the decision making process.
This 86 page on line booklet is probably the best comprehensive resource on multiple myeloma. It is in depth, concise, and understandable. A great resource for both new and veteran patients.
Multiple Myeloma Research Foundation
A non-profit organization dedicated to funding research and helping patients understand their disease. A great source for finding clinical trials.
American Society of Hematology (ASH)
Their mission is to further the understanding , diagnosis, treatment, and prevention of disorders of the blood by promoting research, clinical care, education, training and advocacy in hematology.
Multiple Myeloma Diagnosis and Treatment
A bit technical so you will need your white coat to read it as it is written for a physician audience. Probably the best single piece of work to give you the big picture (with supporting data) on current approaches to diagnosis and treatment of multiple myeloma. A Mayo Clinic publication.